Students studying NC International Travel with Airport Ground Operations at James Watt College raised £201.60 for the PNH Scotland charity by holding a cake sale, face painting stand and raffle at the Finnart Campus.
Beverley Hardie, Travel & Tourism lecturer at the college commented “My Mum Joyce Juszczak was diagnosed with Paroxysmal nocturnal hemoglobinuria (PNH), a rare blood disease, in January 2011. It took 7 months of fighting the NHS for them to agree to a lifesaving drug for her, after a long campaign that took us to the Scottish Parliament and a meeting with the Health Secretary Nicola Sturgeon. This drug prevents my Mum from having a fatal blood clot so it was vital she received this but very frustrating it took so long.
“My NC International Travel students were aware of the emotional ups and downs I was going through to try and fight for this drug and kept offering to help in any way that they could. The group offered to do a fundraiser as part of an ‘event organisation’ unit and we agreed that it would be excellent to give the proceeds to PNH Scotland to help raise awareness of this rare disease to help others receive the medication they need. I am very proud of them all for raising this money, and would like to personally thank them and everyone who donated on the day.”
Lesley Loeliger, founder of the charity PNH Scotland commented “I would like to thank the students at James Watt College who worked so hard to raise awareness of PNH Scotland on Rare Disease Day. I am so grateful to you. In particular, thanks to Beverley Hardie who organised the event and who has always been a great supporter of PNH Scotland. The money will be used to produce documentation that will be sent to all Haematology departments throughout Scotland. The information will also help newly diagnosed patients understand their diagnosis at make clear what help there is available at the PNH outreach clinic at Monklands Hospital.”